INSERM U1290 - RESHAPE
Title of thesis : Access to pediatric rheumatology centers for patients with idiopathic juvenile arthritis: Description of psychological, social and geographic determinants - Evaluation of factors predictive of delayed care.
Year of registration : 03/03/2021
Co-directors : Anne-Marie Schott / Caroline Freychet / Jonathan Lachal
Summary of the thesis :
Juvenile idiopathic arthritis (JIA) is the most common chronic pediatric rheumatological disease. The term JIA encompasses a heterogeneous group of different diseases of varying severity and long-term consequences. Early management has been widely demonstrated to reduce the risk of joint and/or eye damage and improve children's quality of life. It is therefore essential for patients to be referred timely to a pediatric rheumatology center for appropriate treatment. A better understanding of the psychological, social and territorial determinants of these delays would above all identify the obstacles and levers for action that would provide better referral of JIA patients, address training needs of healthcare professionals likely to encounter children with JIA, and identify strategies to enable patients and parents to seek and benefit from appropriate care.
Aurélie Chausset holds a Master's degree in Health Biology, with additional training in clinical epidemiology and data management. I work in the Women and Children's Unit of the Clermont Ferrand University Hospital, where I hold the position of Clinical Research Associate.
As part of my work, I coordinate the Auvergne-Loire observatory of pediatric-onset chronic inflammatory diseases of the musculoskeletal system. The primary aim of this project is to describe the long-term evolution of children, particularly those suffering from Juvenile Idiopathic Arthritis, from the onset of the disease through to adulthood.
