Aurélie Chausset, PhD Students, Reshape U1290
Access to pediatric rheumatology centers for patients with idiopathic juvenile arthritis: Description of psychological, social and geographic determinants - Evaluation of factors predictive of delayed care.
Juvenile idiopathic arthritis (JIA) is the most common chronic pediatric rheumatological disease. The term JIA encompasses a heterogeneous group of different diseases of varying severity and long-term consequences. Early management has been widely demonstrated to reduce the risk of joint and/or eye damage and improve children's quality of life. It is therefore essential for patients to be referred timely to a pediatric rheumatology center for appropriate treatment. A better understanding of the psychological, social and territorial determinants of these delays would above all identify the obstacles and levers for action that would provide better referral of JIA patients, address training needs of healthcare professionals likely to encounter children with JIA, and identify strategies to enable patients and parents to seek and benefit from appropriate care.
