Lucie Jurek, Kathy Leadbitter, Bruno Falissard, Cyrille Colin, Sandrine Touzet, Marie-Maude Geoffray
Autism. 2023 Apr;27(3):647-666. Epub 2022 Jul 28.
Abstract
The effectiveness of parent-mediated interventions in the field of autism spectrum disorder is well documented but information on the experience of parents involved in parent-mediated interventions is limited.This study is the first synthesis of evidence concerning the experience of parents involved in parent-mediated interventions. It synthesizes the voice of 345 parents across the world into four general themes: barriers to implementation and logistical issues, feeling overwhelmed and stressed (a need for support), facilitators of implementation, and empowerment in the parent and improvement in the child.The findings of our study provide evidence that parent-mediated interventions should be adapted to the needs of each family. Specific care and support should be offered to parents in addition to parent-mediated interventions. Our study, however, highlights which outcomes are important to parents and should be considered in future studies.
PMID: 35899918 DOI: 10.1177/13623613221112204
